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Table 2 Family-centred care "wish list"

From: Lessons learned from family-centred models of treatment for children living with HIV: current approaches and future directions

HIV + TB care

Paediatric + adult primary care

Psychosocial/economic support

Administrative

• PMTCT

• Immunizations

• Adherence counselling for adults and children

• Follow up and patient tracking

• VCT, including viral diagnostic tests for early infant diagnosis

• Growth monitoring

• Psychosocial support for both HIV+ and HIV- caregivers, including substance abuse, mental health, and domestic violence education

• A tight network of referrals and linkages with community-based organizations

• Opportunistic infection prophylaxis

• Routine neurodevelopmental assessments

• Psychosocial support for children: social and educational activities

• Monitoring and evaluation systems

• HAART for adults and children

• Nutritional supplementation and infant feeding support

• Early childhood development programmes

 

• Regular TB screening, INH prophylaxis, and treatment

• Reproductive health services, including cervical screening and STD care

• Subsidized patient transport to and from the clinic

 
 

• Family planning services

• Income assistance

 
 

• Insecticide-treated bed nets, malaria screening and treatment

  
 

• Management of other endemic disease (e.g., helminths)

  
 

• Management of chronic illness: cardiovascular disease, Type II diabetes, hyperlipidemia

  
 

• Safe drinking water

  
 

• Pain management and palliative care

  
 

• Home health visits for pregnant mothers and young children

  
  1. Tolle, Richter, DeGennaro, and DeBaets [16, 48, 52, 59]